VP of Data Intelligence & Technology

TITLE: Vice President, Data Intelligence & Technology (Product, Platform, IT, Analytics, Systems)

DEPARTMENT: Data Intelligence & Technology

LOCATION: Washington, DC Remote / Hybrid

POSITION TYPE: Full-Time, Exempt

REPORTS TO: Chief Data & Analytics Officer / Chief Technology Officer (CTO)

COMPENSATION: $155,000-$166,000 annual salary; Healthcare benefits are available for this role.

ORGANIZATION OVERVIEW:

The Colorectal Cancer Alliance is a national nonprofit organization committed to ending colorectal cancer within our lifetime. We help patients, families, survivors, and caregivers navigate diagnosis and treatment options, connect them with those who can share experiences and knowledge, and identify resources to meet their needs. We partner with healthcare professionals and social influencers to raise awareness of preventative screening, and we collaborate with researchers to better understand the disease and fund critical research. Our efforts are urgent, effective, and efficient because we believe that tomorrow can't wait.

The Colorectal Cancer Alliance (The Alliance) is committed to transforming colorectal cancer research, patient advocacy, and precision medicine through data-driven solutions and technology innovation. Our ecosystem-including BlueHQ (patient engagement platform), BlueLake (real-world data hub), and K-SPY (clinical trials enablement platform)-enables patient navigation, real-world evidence (RWE) generation, and research acceleration through advanced data governance, interoperability, analytics, and cloud-based platforms.

As we scale, we seek a Vice President of Data Intelligence & Technology to lead, integrate, and unify our technology, research, and data strategies. This leader will drive data governance, security, privacy, engineering, analytics, and IT infrastructure-ensuring compliance, scalability, and mission-driven innovation that supports patients, caregivers, researchers, and pharmaceutical partners.

POSITION OVERVIEW

The Vice President, Data Intelligence & Technology (DI&T) will lead the Colorectal Cancer Alliance's data-centric technology and analytics strategy-bridging patient engagement, research, data interoperability, and clinical trial innovation. This role will oversee:

• Technology Strategy & Systems Architecture - Drive the evolution of data systems, integrations, and product infrastructure to support patient navigation, care and research.
• Data Governance, Security & Compliance - Ensure adherence to HIPAA, GDPR, 21 CFR Part 11, HITRUST, and implement privacy, security, and AI ethics frameworks.
• Product & Platform Leadership - Develop interoperable, API-led platforms using FHIR/HL7 and similar standards for real-world evidence (RWE) and research enablement.
• Analytics & Research Enablement - Oversee analytics-driven patient navigation, predictive analytics, and real-world data insights to support clinical trials and precision medicine.
• IT & Cloud Infrastructure - Optimize AWS, MuleSoft, Salesforce, and dbt for scalability, security, and operational efficiency.
• Support Development & Fundraising - Enhance donor engagement, campaign analytics, and fundraising strategies by integrating Salesforce Nonprofit Cloud and predictive insights.
• Support Finance & Business Intelligence - Strengthen financial analytics, reporting automation, and ROI tracking to support grant management and investment decisions.
• Support Marketing & Communications - Leverage data analytics and audience insights to drive engagement, outreach effectiveness, and mission impact.

This role requires a visionary leader who can align data, technology, research, and non-profit strategy while ensuring scalability, security, and mission-driven innovation across all organizational functions.

KEY RESPONSIBILITIES

Data & Technology Leadership

• Oversee the strategy, development, and integration of the Alliance's data platforms, including:
  • BlueHQ 2.0 (Patient PRM & Engagement Platform)
  • BlueLake (Real-World Data & Unified Research Hub)
  • K-SPY (Adaptive Clinical Trials Medicine Platform)
• Platform/Integration Engineering - Architect and implement a FHIR, API-first, and cloud-native technology stack to enable scalable, interoperable data exchange.
• Lead cross-functional members/teams across Data Engineering, IT, Product, Analytics, and Research Enablement.
• Fulfill the data and technology strategic roadmap, aligning product, engineering, and analytics teams with our mission.
• Operationalizing structured software development life cycle (SDLC) processes for developing, testing, deploying, and maintaining systems to ensure high-quality, security, and scalability while meeting business and technical requirements.
• Operationalizing DevOps for integrated software development and IT operations to improve the speed, efficiency, and reliability of system releases including automation, continuous integration, and deployment (CI/CD) to reduce risk and enhance scalability.

Data Governance, Compliance & Security

• Establish a data governance framework, ensuring compliance with HIPAA, GDPR, 21 CFR Part 11, HITRUST.
• Implement enterprise-grade security practices, including role-based access control (RBAC), encryption, and secure API integrations.
• Support patient consent models, AI governance strategies, and ethical data-sharing policies.
• Support a common data model & taxonomy for patient registries, real-world data (RWD), and research datasets.
• Support metadata governance across BlueHQ, K-SPY, and external research partners.
• Support automated proactive data quality monitoring and resolution (validation rules, thresholds, alerts); and reactive data observability (anomaly detection, monitoring dependencies, lineage tracing).

Research & Clinical Trial Enablement

• Develop real-world evidence (RWE) data strategies to support pharmaceutical, biotech, and research collaborations.
• Oversee FHIR, HL7, and AWS HealthLake integrations to enable longitudinal patient tracking and research insights.
• Lead the evolution of Electronic Data Capture (EDC) & Real-World Data (RWD) infrastructure, ensuring seamless clinical trial data ingestion, staging, and analytics (e.g., REDCap, Case Report Forms).
• Ensure that research data is structured, scalable, and regulatory-compliant for precision oncology, treatment efficacy studies, and novel biomarker discovery.

AI, Analytics & Predictive Modeling

• Oversee the implementation of AI-driven patient navigation, risk modeling, and clinical trial recruitment algorithms.
• Implement predictive analytics models for early risk detection and patient stratification.
• Standardize data pipelines, analytics environments, and governance policies across the organization.

IT & Security Infrastructure

• Scale the Alliance's cloud infrastructure (AWS, MuleSoft, Salesforce) to handle sensitive patient and research data securely.
• Establish SOC2-compliant IT cybersecurity with continuous monitoring, anomaly detection, and compliance auditing.
• Drive cost optimization, scalability, and performance monitoring across IT and cloud platforms.
• Maintain secure API authentication policies (OAuth, JWT, role-based access).

REQUIRED QUALIFICATIONS

Technical & Data Strategy

• Strong demonstrated comprehension and expertise in Enterprise Data Architecture with experience designing and codifying scalable, decentralized data ecosystems.
• Strong background in cloud & infrastructure management, particularly with AWS (IAM, S3, RDS, OLAP, SageMaker, HealthLake), MuleSoft, Salesforce, and dbt.
• Knowledge of FHIR, HL7, REDCap, and interoperability standards for research and clinical trials.
• Hands-on experience in API and platform engineering, including building secure API-driven integrations for RWE, patient data, and analytics platforms.

Leadership & Execution

• Minimum of 12+ years in data, technology, or platform leadership, ideally within healthcare, non-profits, life sciences, or biotech research organizations.
• Proven ability to lead cross-functional teams across product, engineering, analytics, AI, compliance, and security.
• Strong balance of technical expertise and strategic execution to drive mission-driven innovation.

Compliance & Regulatory Expertise

• Deep understanding of HIPAA, GDPR, 21 CFR Part 11, HITRUST, and data governance best practices.
• Experience implementing compliance frameworks in clinical trials, RWE, and patient data ecosystems.

Research & Clinical Trial Enablement

• Experience supporting pharmaceutical partnerships, clinical research, and precision oncology initiatives.
• Strong background in managing compliance-heavy data ecosystems, the lifecycles, and ensuring research integrity.

Preferred Qualifications

• Experience in non-profit, patient advocacy, or mission-driven research initiatives.
• Prior leadership experience in a high-growth research organization, hospital research network, or biotech setting.
• Expertise in advanced analytics, risk modeling, trial matching, and precision oncology.

STATEMENT OF NON-DISCRIMINATION: The Colorectal Cancer Alliance does not discriminate on the basis of race, color, gender, disability, age, religion, sexual orientation, nationality, or ethnicity. We are strongly committed to hiring a diverse and multicultural staff and encourage applications from all backgrounds.

HOW TO APPLY: To apply, please complete the application in our ADP Workforce Now application portal.

To see all employment opportunities at the Alliance, please click here to be directed to our careers site.

If you encounter any issues with this application, please contact us at jobs@ccalliance.org